Discontinuing Continuing Care

Not a lot of people know that the NHS has a responsibility to provide Continuing Care.    It’s not surprising because the whole issue is shrouded in confusion and complexity.    I will try to unravel the issues in this blog.

Basically if you have a continuing need for health care from a clinician, the NHS should provide it FREE.    But therein lies the problem, because the NHS is short of cash and has been for some considerable time.    The issue is about people who are chronically ill and have a long-term condition which requires the regular attention of a clinician, usually a doctor but it could be another clinical specialist such as a physiotherapist.

That continued involvement, particularly if it involves a hospital stay, can be very expensive.    Hence the confusion and complexity.     My first experience of the issue was in running nursing homes in the 1980’s and 1990’s.  Some of our residents with serious health conditions, were paid for in full by the NHS.      This was usually an alternative to them staying in hospital.

Then in 1993 everything changed when Social Services became responsible for assessing peoples’ eligibility for admission to nursing and residential care homes.     Along with that responsiblity came the liability for providing public funds for people with limited resources.   The conundrum was that there were still some individuals who were paid for entirely by the NHS because of their continuing health care needs.

Individual Health Authorities and Social Services Departments intepreted the boundaries of this type of care differently, which led to accusations that the NHS was not providing a universal service for people with the same condition.     The other big anomaly was the treatment of patients with dementia where previously many dementia patients were looked after by the NHS in long-stay wards.  Progressively those wards were closed and the patients moved into nursing homes.       This shunting of costs from the NHS to Social Services led to endless disputes and delays in transferring people out of hospital.

Then came the Coughlan case where a woman who had previously been funded by the NHS, was refused further financial support on the basis that there was no further treatment that the NHS could give her.  She contested that view in the Appeai Court and won, which opened the door to an ongoing argument about “Continuing Care” which exists right up to today.

In researching this blog, I looked up the Government Assessment Form for Long-Term Health Conditions, which was only eventually published in November in 2012.     It’s 18 pages long and full of loaded questions which can only easily be answered by qualified staff, even though it is intended to inform patients of their rights.

The ongoing arguments have spawned a host of legal firms specialising in advising on patients’ rights to long-term care.     Equally, on the NHS side of the argument, there are private health care consultancies whose aim is to restrict the number of people entitled to claim NHS financial support.    This whole issue has developed into a multi-million pound industry.

All because successive Governments have not had the courage to face up to the problem.    The reality is, particularly with dementia, the NHS cannot afford the cost of caring for the increasing numbers of people with a serious health issue to which there is no cure.

Posted in N.H.S. | 5 Comments

Care Home Calamity

“40% of Care homes are not fit for purpose”

screams the front page of the Daily Mail on August 7th 2017

No news there then.     In fact I am surprised the figure is so low.  Most care homes are not fit for purpose and never have been.     Few people move into them voluntarily.      Most go there because there is nowhere else to go —– or because they are put there by relatives who can no longer cope.

Care Homes for the elderly have never been ‘homes’, they are warehouses for older people. From the 1980’s they ceased to be operated by well-meaning carers and became money-making machines for home owners and later, venture capital investors.

Initially this private sector market was welcomed by Central Government as a way of coping with growing numbers of frail older people, without having to provide public capital for Local Authorities or Housing Associations.    Only when excessive profits were being made did they start to regulate the poor standards of care being provided.    Better space requirements, single rooms and en suite toilets were belatedly introduced.     Training standards for care staff were demanded but not effectively delivered, because levels of pay stayed low and staff turnover was high.   Now forty years on the Government has proposed to improve wages, but risks reducing profit margins to a level which will make homes less attractive to investors.

These latest headlines in the Daily Mail are commenting on the fact that more and more Care Homes are failing to meet even basic standards of care.    The RSPCA looks after dogs better than we look after many older people in care.

Residential Care Homes were a policy that was never wanted by older people, but it has taken successive Governments of all political persuasions forty years to realise that this is a

DEAD END !

Now the big question is what are they going to do about it ?

  • The immediate answer is NOTHING.
  • The reality is that Care Homes can’t be closed because there is no alternative in the short-term.
  • The ever-increasing number of  frail older people makes it unlikely even in the  next decade or more.
  • One radical approach might be to NATIONALISE THEM.
  • Default on the unreasonable loan debts, prosecute the failing home owners and transfer the homes to a new SOCIAL CARE CORPORATION.
  • You could then introduce staff training programmes with formal qualifications linked to significantly increased pay.
  • The higher revenue costs could be financed by requiring residents who can afford it, to pay higher fees from the sale of their houses.

All of these ideas have been discussed over the years but none of them have been taken up. Because of politicians lack of honesty, older people and their relatives have been led to believe that either social care is free if they have limited resources, or at least they can keep their own homes if they are a home owner.  This has been “an elephant in the room” for decades, but there will be no solution without addressing this issue.

Posted in Residential Care | 1 Comment

Maybe NOT Snowshill Manor at Kilsby !

Following on from my last blog about Snowshill Manor, I’ve had a discussion with Mo and she’s not too keen on the idea of moving into the garden sheds.  I am now having second thoughts about collecting even more clutter at our house.    Maybe George and Walt are right after all.     Better to chuck it rather than keep it.

Mr Charles Paget Ward at Snowshill Manor was on a mission to preserve things for posterity, but that is not my mission.    I might do it if I thought that by  accumulating lots of clutter, that one day it all might turn into valuable antiques.     Then perhaps I could consider it an investment, but looking at the things we have that are over 50 years old  and are still worth nothing, I am not so sure it is a very good bet.    Besides, what will I do with all that money unless I live until I am 150.

Although my odd sock collection is very unique and if ties come back into fashion I will also be well placed.

Nope.      Chuck it sounds like a better option.

There will be a copy of Walt Hopkins and George Simons’ book — “Seven Ways to Lighten Your Life Before You Kick the Bucket” — for the best ideas on de-cluttering.

Posted in SMILES | Tagged | 1 Comment

Maybe Snowshill Manor at Kilsby ?

Following on from my earlier blog about my recent visit to Snowshill Manor, I have had a thought :-

What if I were to do a Snowshill Manor approach to de-cluttering at our home in Kilsby ?

We would not have to buy more stuff, just rearrange all the clutter into collections in each of the rooms in our house.      The previously troubling ‘clutter’ could thereafter be referred to as ‘precious artefacts’.

  • The small bedroom that used to be Tom’s could be renamed the Pants and Vests Fashion Collection.  My extensive Christmas annual gifts all pegged out on rotary clothes lines and clothes horses.    The long Johns  might have to hang on one of those retracting poles that lifts up to the ceiling.    My Calvin Kleins could be at the forefront, or should that be Y-front.    Later, I would be able to buy some string vests to add to the collection.   I am sure this would become a most popular display to visit, when we eventually donate the house to the National Trust.
  • The main lounge could be turned into the Cushion and Teddy Bear Collection. We might just about be able to get all the cushions in one room.  Then the teddy bears could bounce around on them all day.  We could even occasionally hire out the lounge as a playpen for children’s birthday parties.  That would be fun.
  • The study could be our new Museum of Modern Art Gallery.  It would contain all of my uncle’s miniature wooden boxes, which are genuinely works of art.  All of my own unique wood turned sculptures which are waiting to be preserved for the nation. Then we come to all of Tom’s childhood drawings which are currently in a plastic box under his bed.   He assures me that it’s just a matter of time before they are worth a fortune.  Last, but certainly not least, we could include Mo’s ceramic sculptures and tiles and pheasants and pigs and dogs and cockerels and angels.  She will soon have a Noah’s Ark full.
  • The kitchen could be taken over as a Whisky and Wine Cellar .  It could house my vast collection of Malt Whisky’s and our racks of red and white wine.  We might as well put in all the other bottles around the house, providing of course we don’t get mixed up with all the bottles of cleaning fluid and medication.
  • The front hall could become the Junk Mail Room.    We wouldn’t need to open the post, we could leave it to pile up under the letter box for years.  No need to answer it or throw it away.  Better stop the newspaper deliveries though.

The man from Snowshill Manor – Mr Charles Paget Wade, eventually had to move out of his manor house into an adjoining barn and outbuildings because his collecting outgrew his accommodation.    Like him, Mo and I could move into the old coal shed and live on the garden furniture that is stored in there.    The shed next door has a copper boiler which Mo could use to do the laundry and we have several old cast-iron irons which she could use to iron all my shirts.   Not too far down the garden path is the old privy and I should be able to find a tin bath on the Daventry tip.

This might be a very good way of more efficiently using our house to house all our clutter —– oops I mean —- precious artefacts.    Living in the garden shed would be a bit of a sacrifice, especially in the winter, but it may be a price we have to pay for our place in history.

I’ll write to the National Trust tomorrow!

Posted in SMILES | Tagged | 3 Comments

Snowshill Manor Clutter

I went to Snowshill Manor in Gloucestershire recently and it gave me a whole new perspective on clutter.     The guy who owned it originally, Mr Charles Paget Wade, was an architect who liked collecting things.      All sorts of things, anything and everything.

It made me wonder if I have been going in totally the wrong direction with all this de- cluttering, perhaps Walt and George should have written a book called ” Seek it, Heap it and Keep it.”  (You can see my earlier blogs on de-cluttering by clicking on “CLUTTER” in the TAG CLOUD).

Mr Wade amassed a great collection of bicycles, swords, children’s toys, boxes, tins, fabrics, Chinese artefacts (although I didn’t know what they were) …….   and models of ships, cobblers foot lasts,  spectacles, kitchen pots, ladders,  silver goblets, glasses and pans …….   and wheelchairs, suits of armour, soap, beds, looms, samurai warriors, dolls houses …….  and books and telescopes and locks and coins and stones and sticks and jars and  model engines …….  and globes,  leather boots, ladies dresses.  I have probably missed just a few hundred things.  In one sense the house was full of clutter but because they were all things from the past, they were also curiosities.

The displays were head-spinningly confusing and not at all unravelled by any useful labels or explanations.  Hidden in the half-light of deliberately dark displays.    If there was any order to Mr Ward’s collecting, it was that there was no order!

It was GREAT !

Evidently Mr Wade wanted visitors to his collection to have the joy of discovery and this was behind his reasoning for keeping the collections poorly illuminated.  I don’t quite buy this logic because I found it more frustrating than illuminating.  I would suggest to the National Trust that they give every visitor a small torch when they enter the building.

He must have had a ball ………. and loads of money ………. and lots of time………and a very tolerant wife !       He wasn’t cluttering he was collecting for posterity.    He made a virtue out of hoarding.       Not a minimalist, he was more your gold-plated maximalist!

I wonder if I should get all my thrown-away clutter back from Daventry rubbish tip ?

There will be a copy of Walt Hopkins and George Simons’ book — “Seven Ways to Lighten Your Life Before You Kick the Bucket” — for the best ideas on de-cluttering.

Perhaps I should send a copy of Walt and George’s book to Mr Charles Paget Wade posthumously?

Posted in SMILES | Tagged | 4 Comments

Memory Card Readers — Post Script

In the middle of writing my previous blog about card readers, my iPad flashed up a message that the battery was getting low.  No problem.  It happens most days but with my newly acquired geeky skills, to recharge it I simply plug in a USB plug into my iPad.  It’s a good job I know that Universal Serial Buses plug into iPads 🙂

But.  It didn’t work :-(.  No fuses to mend, I unplugged it and plugged it in again.  I’ve seen professional geeks do this.  Although I don’t know why.  It still didn’t work! 😦 :-(.

I switched off my iPad and tried again.  TWICE!  But no luck.  My battery was draining away before my eyes and there seemed to be nothing I can do about it. 😦 😦 :-(.

Then I had an idea ——– Mo has an iPad.  I will borrow her USB plug.  After agreeing not to take it out of her sight, she let me use it.  Only problem was, it didn’t fit.  Mo’s older iPad had a different type of USB plus to mine 😦 😦 😦 😦 .

Maybe my iPad is broken forever 😦 😦 😦 😦 :-(.

Maybe I have to buy a new iPad 😦 😦 😦 😦 😦 😦

Just before I gave up, I plugged it in again one final time.  And it worked 🙂

Frustrating or what !

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Memory Card Readers

I can’t imagine why anyone would want a card reader.   I can read my cards all by myself.   Perhaps they get a lot more fan mail than I do, or receive hundreds of Christmas cards which they don’t have time to read.   But also when it comes to it, I don’t even know what a card reader is.   This is all about disappearing money again.     (See my earlier post “I like money” dated 20th July 2017)

My interest in them was raised when I read about a lady who had been sent a card reader in the post, supposedly from her bank.   After a friendly telephone conversation with someone who said they were from her bank, she trustingly, but foolishly gave them her bank account details.   The next day she found out all her money had been removed from her account!

So I looked up card readers on Wikipedia, which is the font of all essential information these days.     That is where I walk into a world of new-speak.

The Wikipedia simple definition of a card reader is:

“A memory card reader is a device typically having a USB interface, for accessing the data on a memory card such as “COMPACT FLASH” (CF), SECURE DIGITAL (SD) or MULTIMEDIA CARD (MMC).  Most readers offer write capability and the card, together with the card reader, can then function as a pen drive.”

That was the simple explanation!

  • If you want to delve into it a bit more, you need to know what a USB is.  USB stands for Universal Serial Bus.  The only problem is you can’t use your bus pass to travel on it.
  • Also, what about CF, SD and MMC.  They all do the same thing, more or less.  They remember things.  Like bus timetables I suppose.
  • Some also offer writing capabilities and are called Pen Drives.  So they must be like fountain pens, although it’s best not to fill them up with Quink.

No wonder Grannies and Grandpas are being left behind.  Most of this new-speak are abbreviated language has only been around since the year 2000 and every year afterwards some new name is introduced, just to confuse you even more.

Little surprise then that Grannies and Grandpas get scammed!

Posted in Grey Products | Tagged | 3 Comments

As the Brexit negotiations continue, the Last Laugh Looney Party, continues to take a prominent lead in the discussions.  After the success they had in reaching agreement in banning packaging, they moved forward with the progressive proposals on “small print”. Once again Mr Junket thought this was a small and inconsequential issue.  But it’s certainly not a small issue for older people who are increasingly marginalised by new technology.

 

The GrumbleSmiles blog has been raging about the issue of new gadgets which leave old people behind.  The promise of new technology was supposed to make life easier which we are sure it does for many people.  But not for old people who can’t get to grips with it. Here are some examples highlighted in the GrumbleSmiles blog.

This blog entitled “Technology Gap” was posted in 2012 and it explains some of the frustrations older people have with using computers.

 

 

This blog was a moan about Kindles wich seemed to be all over the place in 2012. They had the potential to replace books altogether but they still had very small fonts which were not easy to read.

Technology has moved on so quickly that they have now been virtually replaced by tablets (not the aspirin variety).

 

In November 2012 when this blog was written, it was about the difficulty older people had using ATM cash machines and online banking.

Now we are moving towards a cashless society that won’t be easy for older people.

 

A year later in 2013, I decided to become a member of the younger generation and get into video games and texting.

Sadly it never happened because the video game controls were beyond me and texting was another one of those abbreviated languages I couldn’t be bothered with.

 

I had great hopes for digital watches which I wrote about again in 2013 in a blog called “Old Geek 2”.

That is yet another gadget that passed me by.

 

 

For Christmas in 2013, I got an MP3 player. That really moved me into the digital age! I was able to travel up and down in the train to London and not look out-of-place because I too had some earphones stuck in my ears just like everybody else.

 

In 2014 I blogged about iPhones.  For the younger generation, they have replaced telephone landlines and are an essential piece of everyday equipment so that they can stay in touch with everybody, every hour of everyday.

I still don’t have one and am content to be out of touch with people most hours of most days.

 

To read all these blogs click on “Technology Gap” in the Tag Cloud.

Most of these raging blogs are about the new technologies of personal computers and mobile phones.  But the impact of new technology spreads much further than that and dramatically changed everything from televisions to microwaves to cookers, washing machines, tumble dryers etc.  You name it and technology has transformed it with an array of buttons which previously were only found in the cockpit of Jumbo Jets.  Whilst for the younger generation this makes many things easier and more accessible.  It has had the opposite impact on many of the older generation.

The Last Laugh Looney Party has now agreed with Mr Junket of the European Union and Mrs Tezz on behalf of Britain, that all gadgets in future will be restricted to TWO BUTTON TECHNOLOGY.  If you can’t make it work with two buttons, then think again and make it simpler to operate.  This will be a radical shift in gadget design whose aim is to make everything age friendly.  Then older people will be able to use their newly released wealth to buy many more things that will be useful to them in making life easier.

 

 

Posted on by john graham | 4 Comments

Do it yourself Dementia Care.

In their desperation to cope with the tsunami of dementia that is overwhelming the NHS some clinicians are resorting to consulting staff and even relatives of patients.     An interesting report of an audit by the Royal Chollege of Psychiatrists has come up with some rather obvious insights.

They interviewed 15,000 staff on NHS hospital dementia wards together with 5,000 carers.       They found that a quarter of staff said they cannot feed their patients properly.

You have to wonder if the psychiatrists have visited any of these wards at all in recent years!     If they have they must have had their eyes closed.   This is not a new situation.   Back in 2010 the Care Quality Commission reported that 300 patients die in hospital of malnutrition and many of them would have been dementia  cases.     ( See my blog written in December 2010 by clicking on ” Neglect shames Britain” in the Tag Cloud)

How many more people will have died since then ?

The psychiatrists solution is to ask relatives to come into hospital and help feed their loved one.    This is not a bad idea, but why stop at feeding?    Why not get relatives to hand out the medication?    Maybe get patients washed and dressed?    Oh and perhaps give the floors a good scrub before they leave?

Of course you would have to overcome unwelcoming staff, restrictive visiting hours and excessive parking charges first.

But it  might work.

Alternatively you could employ the right amount of staff to provide good care. Adequate nutrition is a fundamental part of health care, not an incidental add-on.

Posted in Dementia, N.H.S. | 2 Comments

Tidy Bears and Clutter Glasses

After a period of remission from my cluttering dissorder I’ve now started again with the help with the Tidy Bears.   (You can see all my earlier blogs on de-cluttering by clicking on “CLUTTER” in the TAG CLOUD).

I have mentioned before that we have lots and lots of spare glasses.   Probably numbering more than 100.   Quite why I have no idea, we just seem to have accumulated them over the years.

Here are some Bear explanations :-

  • Patch thinks — ” Maybe John broke one of a set of six and didn’t want to tell MO.     So he bought another set of six.”
  • Whitey Bear said ” Why do glasses come in sets of six?  What if you have seven friends ?”  John couldn’t answer that.
  • Pyjama Bear asked “Do they have glasses for my night-time drink of Horlicks ?” MO said she didn’t, but she would buy a set of six tomorrow, because you never know when six sleepy Bears might come around.
  • Little Ted politely enquired “Why can’t we have a Teddy Bears Picnic and invite all our friends around ? Then we could have honey and orange juice in glasses, and cream and honey in glasses, and just extra honey in more glasses.  We could also have honey on toast.  Brown toast, white toast and toast with the crust cut off, all smothered in honey.  Oh and honey ice cream in tall sundae glasses.  That should use up a lot of glasses.    Then we can do it all again tomorrow !  And the day after, and the day after that!”

Looks like we haven’t got rid of any glasses afterall.

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